New national research into premature deaths of people with learning disabilities consulting on what data should be collected

Dear Colleagues and Friends,

We hope that by now you have heard about the new Learning Disabilities Mortality Review (LeDeR) Programme that has been commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England. The aim of the Programme is to make improvements in the quality of health and social care service delivery for people with learning disabilities and to help reduce premature mortality and health inequalities faced by people with learning disabilities, through national and local reviews of deaths.
The Programme has now started, and we would appreciate your views about a number of aspects of the work.
We have set up a consultation that runs until 10th August to find out your views about:
The core data to be collected at the notification of a death, at an initial ‘light touch’ local review, and in a full multidisciplinary review of the death of a person with learning disabilities (LD).
The criteria for which deaths would require an initial ‘light touch’ local review only, and which will require full multiagency review.
The definition of key terms used in the Programme.
The standards against which ‘best practice’ will be measured.
The link to the online consultation is at:

Pauline Heslop