21 with LD looking for advice and support

My son is 21 with LD due to having a rare metabolic condition Agininosuccinuc Acidurea (ASA). Diagnosed on day one.

We have moved to Oxfordshire and are having no end of issues with Oxfordshire SEN, they are ceasing his EHCP which I am contesting.

Hoping that there is a wealth of knowledge in this group.

It’s just the two of us at home I am his full time carer, he has two siblings who have now left home.