Latest LeDeR Mortality Review Report

This report has gathered some vital data to help us understand more about the number of people with learning disabilities who have died from Corona Virus recently.It also has very useful web links to resources for people with learning disabilities, family carers and professionals.


· NHS England continue to support LeDeR at the University of Bristol

· Latest COVID 19 data

· LeDeR S251 approval

· The effect of COVID 19 on informal carers of people with learning disabilities

· LeDeR Frequently Asked Questions

· NHS England COVID 19 resources and guidance

NHS England continue to support LeDeR at the University of Bristol

We are pleased that NHS England will continue to fund the University of Bristol to support the LeDeR programme until May 2021. NHS England’s full statement is available.

Professor Pauline Heslop, the LeDeR’s programme’s lead said: ‘The NHS’s Long Term Plan recognised the importance of LeDeR and so it’s great news the University of Bristol will continue to support the LeDeR programme for a further year.

LeDeR aims to improve the quality of health and social care services for people with learning disabilities. The impact of COVID 19 is being felt everywhere. It’s vital we have the evidence to understand the impact of COVID on all our communities.’

Latest COVID-19 data

We are providing weekly updates to NHS England on the total number of COVID 19 deaths reported to the LeDeR programme. The data is being shared with Public Health England to help us better understand the impact of COVID-19 on people with a learning disability.

The data, published by NHS England on 18th May, considers whether COVID-19 is suspected or confirmed as the cause of death.

LeDeR S251 approval

The Confidentiality Advisory Group has now conditionally approved moving ownership of S251 approval from the University of Bristol to NHS England. The new reference number for this is 20/CAG/0067. The approval is also being extended to May 2021.

For any queries about CAG S251 approval please contact Louisa Whait at NHS England/NHS Improvement.

The effect of COVID 19 on informal carers of people with learning disabilities

An online survey for people who are the main provider of care for a person with learning disabilities and have access to the internet has been developed by Swansea University. The research is supported by The Challenging Behaviour Foundation, Mencap and the British Institute of Learning Disabilities. For more information see

LeDeR Frequently Asked Questions and briefing papers

The LeDeR website has a comprehensive list of FAQs that cover everything about the programme. They are particularly useful if you are new to LeDeR - perhaps as a LAC or reviewer - and have ‘why’ or ‘how’ questions.

The FAQs tell you ‘what is the purpose of a pen portrait?’ and ‘why do reviewers only look at one set of notes?’.

More detailed information and briefing papers are available. Here you find out ‘what is a good quality review?’ and how to identify the degree of a person’s learning difficulties.

LeDeR’s small admin team prioritises the queries and questions it receives. Your query may well be answered by the FAQs so do please check here first before contacting us.

NHS England and NHS Improvement COVID 19 resources and documents

NHS E&I have published a wide range of COVID 19 documents and resources. These are designed to support careers, practitioners and clinicians care for people with learning difficulties with (or are suspected of having) COVID 19.

Grab and Go Guide

Supporting patients of all ages who are unwell with COVID 19 in mental health, learning disabilities and autism

Clinical guide for front line staff to support the management of patients with a learning disability, autism or both during the coronavirus pandemic

Care (Education) and Treatment Reviews during the coronavirus outbreak - My CETR Planner

Community Standard Operating Procedure during the Coronavirus (COVID 19) pandemic

Legal guidance for mental health, learning disability and autism and spec comm services, supporting people of all ages

Workforce guidance for mental health, learning disabilities and autism, and specialised commissioning services during the coronavirus pandemic

Managing capacity and demand within Inpatient & Community Mental Health (MH), Learning Disabilities and Autism services for all ages

GP letter regarding shielding measures for MH/LDA patients in high risk groups

Guidance letter issued to primary care on the use of DNACPR in patients with a learning disability

COVID 19 guide for carers and family supporting adults and children with learning disabilities or autism

Easy read guidance advice to staff supporting people with a learning disability or autistic people

COVID 19 guide for social workers and occupational therapists supporting adults with learning disabilities or autistic adults

COVID 19 guide for care staff supporting adults with learning disabilities or autistic adults

COVID 19 personal protective equipment (PPE) guidance

PHE easy read: keeping your mind and body well

An easy read version of the shielding guidance

Admission and Care of Patients during COVID 19 Incident in a Care Home

COVID 19: Our Action Plan for Adult Social Care

Get this LeDeR bulletin sent directly to your inbox

If you’ve been forwarded this bulletin by a colleague, or friend, and want to have LeDeR bulletins sent direct to your inbox, you can add your name to our database by emailing the LeDeR team at the University of Bristol.

The next LeDeR monthly bulletin will be sent out on 23rd June 2020 . Please email with any information to include by 9 June 2020.